Resilient Living Program
The Resilient Living Program focuses on addressing the emotional, social and psychological challenges that come along with FOP.
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Gratitude is not being thankful for FOP and the challenges it causes in life. Rather, it is affirming that despite the difficult parts of life their is goodness and that often this goodness lies outside of ourselves in those around out. Interested in learning more about gratitude? Join our Journaling and gratitude workshop taking place the next 5 Fridays at 10 am EDT/15:00 BST/7:30 pm IST. Learn more and register:
Incorporating mindfulness practices into your daily routine is a great way to help children transition between activities and recollect after challenging tasks. Little Renegades offers a free "Intro to Mindfulness" resource so that you can add a variety of techniques (including tapping, meditations, breathing and mantras) to your parenting toolbelt. Download yours today!
Interested in teaching your child that their brain has the power to learn new skills and develop healthy traits to promote grow despite life's challenges? This spring and summer the IFOPA will be offering a Journaling and Learning with Big Life Journal Workshop. This 8-week workshop is open to English-speaking participants between the ages of 8 and 16. Learn more and complete the interest form:
Have you heard of the term growth mindset? It refers to the belief that our basic abilities can be improved with effort. You may not be surprised to learn that resilience (bouncing back from setbacks) impacts how easily we can maintain a growth mindset. Building up our resiliency impacts not only our emotional health but our cognitive intelligence as well! Learn more about the link between grit, growth mindset & how it impacts intelligence in this 5 minute Ted Talk by Angela Duckworth.
The Rare Youth Revolution is a dedicated news platform for young people to access relevant content centered around rare diseases. To gain a deeper understanding of how mental health in young people is affected by living with a rare disease Rare Youth Revolution has created a survey for children ages 12 & up. Take the survey: https://survey.trend.community/zs/AHCsEN Check out the Youth Edition of the Rare Revolution Magazine:
Looking for a easy way to reduce stress and release tension? Maybe journaling is the right tool for you. Whether you are scribbling out your thoughts with pen and paper or using voice dictation to speak your feelings out loud, sharing our emotions and being able to review can promote self-calming and combat unproductive thinking. Give journaling a try today with these simple prompts for self-reflection:
Prioritizing self-care is hardest when we need it most. Finding the time to step away from your loved one to do something for yourself can be difficult but it's not impossible. If paying for a qualified medical caregiver is a barrier to taking that time away the NORD Rare Caregiver Respite Program is a valuable resource for families living in the United States. Learn more about the program by visiting:
Whether your struggling to hold on to that new year's resolution or looking for a way to boost your perspective after a tough day, daily affirmations can help you overcome life's obstacles and maintain a positive outlook. Affirmations are positive phrases or statements used to challenge negative thoughts. They only take a few seconds throughout your day. Read more about the science behind positive affirmations and find some examples here:
Independence is important for emotional and physical wellbeing at all ages of life. For typically developing children and those with special support needs promoting independence during childhood is key. Read these 6 tips on how you can promote independence in your child. Looking for support in encouraging independence? Reach out to the Family Services Department at the IFOPA for assistance.
During the Virtual FOP Family Gathering last month the IFOPA hosted a caregiver social event featuring a journaling workshop hosted by writer and social worker Pamela Alma Weymouth. Now you can access the presentation slides to learn about the benefits of journaling and start off your own practice. Learn more:
If you missed the Caregiver Campfire "Journaling Through the Storm" workshop at the 2020 Virtual FOP Family Gathering there's still a chance to work with the facilitator Pamela Weymouth to learn a Science of Happiness easy writing practice. Participants share a little, write a little, and learn ways to support their mood and boost resilience during daily challenges. REGISTER and get your zoom link
Many of us may easily use social support as a powerful tool to recover from life's stress. However, there are some important aspects of maintaining a strong social support system that are often overlooked. Join the Resilient Living Educational Series later this month to learn about the difference between dumping and venting, how to reciprocate support and how to support from a place of empathy. Sign up for this month's session by visiting:
Taking care of your mental health can feel overwhelming when you've already got a lot on your plate. The Mighty recently shared a Toolkit for Prioritizing Your Mental Health to provide quick and easy access to a variety of resources to incorporate into your day-to-day activities. From coloring pages to supportive Instagram accounts to follow they've got you covered. View the full toolkit:
Have you heard the starfish story or the saying "action eases despair?" This month the Resilient Living program will explore resources for how to maintain the belief that life is meaningful, it's demands are manageable and that, even in the most unsettling of times, we can find ways to make the world feel more orderly and understandable. Register for the "Sense of Coherence" session and check out the recording of last's month session on "Hope and Optimism"
Life's stressors often trigger the fight, flight or freeze (FFF) response as our body kicks into the physiological stage of trying to escape from danger. Taking a deep breath causes the neural system in our body to pause this FFF response and say "Guess we made a mistake. There's no tiger." A few simple deep breaths saves our body from continuing to create adrenaline and starts the calming process. Learn more about self-calming by checking out of our Resilient Living Educational Series videos:
There is a reason optimism doesn't come easy. Your brain is wired to notice what is unsafe, missing, or going wrong, and it does this as a protective mechanism. The brain is like Velcro for negative experiences but Teflon for positive ones. The good news is that it is possible to teach your brain to be more positive! Listen to Dr. Rick Hanson explain how we can hardwire happiness in his TedX Talk here:
Hope is the backbone of optimism. It is not enough to believe that things will improve. You must also be able to see how they can improve and take action steps to make a difference. On September 15, the Resilient Living Educational Series will focus on a variety of techniques including: Setting goals Creating action steps Working around barriers Using gratitude to rewire our brain to be more positive Sign up today to participate
Check out our latest session in the Resilient Living Educational Series on non-judgment and self-supporting thoughts and why it's important for us to retrain our brain to teach our inner critic to respond productively to situations where things don't go as planned. Watch the recording by clicking here:
Perfectionism often causes a sense of judgment or blame when our standards are not met creating critical thoughts that aren't productive for a learning experience. Being aware of the basic types of perfectionism and staying on the lookout for them can be a great first step. Stay on the lookout for the recording of this week's Resilient Living Educational Series where we discussed how it is possible for a person to set goals and take responsibility for their mistakes in a productive way.
Do you have questions about the newest Resilient Living Resources on the IFOPA's website? If you haven't already check out our energy medicine resources! Don't forget to sign up for our webinar next Wednesday, August 5th to see demonstrations by Gloria and FOP community member Ian! Try out an energy medicine technique today:
Join the Dojo Upstate tonight, 7/23 @8pm EST for their Thursday evening binaural sound meditation livestream. Enjoy this opportunity to surrender to the warm, introspective depth of metal instruments. Sound meditation provides the time to engage deep listening, using sound as the vehicle for self-inquiry, and as a tool for bringing us back to feeling grounded and reminding us of our ability to internally realign. Access the live stream tonight by clicking here: